Wednesday, November 4, 2009

Better Late Than Never...

I've been experiencing some rather odd symptoms lately. The spasticity in my right-sided leg and arm now moves up to my lips/mouth. This has been happening for over a month now. My physiatrist didn't see any cause for worry due to the way it presented. Meaning, it was was totally related to the pattern of the spasticity rather than stroke related.

A week ago, this past Sunday, I had an episode where the tremors start in my legs and goes up to my head. These tremors are very hard to control, and sometimes occur back to back, which was the case on that Sunday. Mickey did all he could to control/stop them, thank GOD. However, after the last one (there were 3), I realized that my speech was strange. To me, I sounded like daffy duck, even spitting on myself when speaking. Over the course of a week, I learned to speak in order to be understood by others. It's quite difficult w/mouth spasticity, and tongue issues, but can be done.

I made an appointment w/my PCP which was yesterday, Tuesday November 3rd. She referred me to my Neurologist/NL so I immediately called his office and stated that I need an emergency appointment. Dr. X is out of the office on Tuesday and Thursday. The nurse spoke w/Dr. X about my concerns and called me back w/appointment for today, November 4th.

Another symptom that has increased in severity and occurence, is the headache in the lower back of my head on the right side. Mickey stated his concern over this symptom because there was a time, I guess a few months back, when they were uncontrollable and constant. Eventually, they became less frequent and intense, but I do still have the headache on a daily basis.

So, I'm off to my appointment w/the NL. I will try to post the outcome when I return home.

Please keep everyone at the ASAP support group in your thoughts and prayers.

I hope everyone is having an enjoyable, and manageable, week!

1 comment:

Anonymous said...

Janice, I read your previous post from September & can relate. It is so frustrating. I've watched your posts at ASAP & you always sound so positive. I'm so sorry you are hurting so much. Sometimes I feel so helpless, frustrated, angry, sad, overwhelmed. I don't have all of the symptoms you have, but I can relate to your pain so well. Please know that I'll keep you in my prayers. You've inspired me so much in how you endure, even though I don't know you. I'm Missd88 over at ASAP. I don't post much, but just know that your msgs are felt throughout that community & you may not hear it, but you have such an impact on people. At least you have on me. Keep your head up & keep smiling. I'll keep you in my prayers.